About World Lupus Day
World Lupus Day is sponsored by the World Lupus Federation, a coalition of lupus patient organizations from around the world, united to improve the quality of life for people affected by lupus.
Through coordinated efforts of its global affiliates, the World Lupus Federation works to create greater awareness and understanding of lupus, provide education and services to people living with the disease, and advocate on their behalf.
World Lupus Day serves to call attention to the impact that lupus has on people around the world. The annual observance focuses on the need for improved patient healthcare services, increased research into the causes of and cure for lupus, earlier diagnosis and treatment of lupus, and better epidemiological data on lupus globally.
World Lupus Day serves to rally lupus organizations and people affected by the disease around the world for the common purpose of bringing greater attention and resources to efforts to end the suffering caused by this disabling and potentially fatal autoimmune disease.
What is Lupus?
Lupus, also known as systemic lupus erythematosus (SLE), is an autoimmune disease that can affect various organs and tissues in the body. The immune system mistakenly attacks healthy cells and tissues, causing inflammation and damage.
The symptoms of lupus can vary widely and may come and go. Some common symptoms include:
- Fatigue
- Joint pain and stiffness
- Skin rashes, particularly on the face, neck, and scalp (often in a butterfly pattern)
- Photosensitivity
- Raynaud's phenomenon (fingers turning white or blue in response to cold or stress)
- Fever
- Hair loss
- Mouth ulcers
- Chest pain or shortness of breath
- Kidney problems
- Neurological symptoms (such as seizures, headaches, or cognitive impairment)
There is no cure for lupus, but treatment can help manage symptoms and prevent complications. Treatment usually involves a combination of medications, such as nonsteroidal anti-inflammatory drugs (NSAIDs), antimalarials, corticosteroids, and immunosuppressants. Lifestyle changes, such as avoiding sun exposure and quitting smoking, can also help manage symptoms. It is important for people with lupus to work closely with their healthcare provider to develop an individualized treatment plan.
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